
Running The Philadelphia Half-Marathon in support of
Taylor Buonadonna and her family.
The first official fundraising endurance event of www.RunningOnLove.org, dedicated to its mission to Give Love…Touch Lives, will be The Philadelphia Half-Marathon on November 22nd, 2009. Our mission is to raise funds for brave 16-year-old Taylor Buonadonna, to help her defeat osteosarcoma—a rare form of bone cancer that she was diagnosed with, at the age of 13.
Taylor is one of 6 children. Her
parents, West and Maria, are waging a valiant fight to conquer this
disease, with the hope and prayer of helping Taylor live a long,
healthy and happy life. Taylor has undergone experimental treatment in Texas,
accompanied by West who was there caring for her. She continues to be treated at the Children's Hospital of Philadelphia.
Here is Taylor’s emotional story of courage, hope and faith,
in the words of her father, West Buonadonna.
At first glance, Taylor Buonnadonna is a normal 16 year-old girl. She’s an excellent student, plays the flute and has lots of friends. She was born in South Philadelphia, and now lives in Washington Township, NJ, with her five siblings, parents, grandmother, two dogs, two cats and two hamsters.
One day, while playing on the trampoline, Taylor banged her knee. After a few days, she complained that her knee was still hurting her. Believing this to just be a normal bruise, we told her to put ice on it and the pain would go away. It did. However, about two months later she banged the same knee in the same way. This time the pain did not go away. We felt like someone was trying to tell us something. We took her for an x-ray, which to our horror, revealed a tumor.
In June 2006, at the tender age of 13, Taylor was diagnosed with a bone cancer called osteosarcoma. Of all childhood cancers, osteosarcoma is rare, but it is the most common bone tumor in children; it affects approximately 400 children under age 20 every year.
Taylor began her treatment at Children's Hospital of Philadelphia (CHOP). This treatment included high doses of chemotherapy for nearly a year. She also endured a surgical procedure called limb salvage surgery, where the affected bone was removed from her right leg. For almost two years, we thought Taylor had gone into remission. But we were wrong. The osteosarcoma returned, and this time it was found in her left knee and had spread into her lungs.
After a second limb salvage surgery on the left knee, we brought her to Memorial Sloan Kettering Cancer Center in New York for two different clinical trials of chemotherapy. Unfortunately, both of those trials failed to stabilize her disease. By this time, the disease had spread into both of her lungs and multiple bone joints.
Taylor was treated by one of the nation’s leading oncology doctors at The University of Texas’, MD Anderson Cancer Center, hoping to give Taylor a better quality of life. She has since returned home to be near family and friends and continues her treatment plan at CHOP or Sloan Kettering.
We often wish that Taylor’s story could be told on a larger scale. By the kindness of so many that have helped us along the way, her story is now being told. Someday we hope to fulfill Taylor’s wish to publish her story, with all the proceeds going to research for her disease.
Thank you for your kind concern,


Lori Sperber and Debbie Shapiro
Running in the NYC Marathon on November 2nd, 2008 with my lifelong friend Debbie Shapiro
I will be running my 4th marathon, the NYC Marathon on November 2nd, 2008. This next marathon event is a “must do” for most marathoners. For me, always a Brooklyn Girl at heart, it will be quite special. I will be running and supporting the Leukemia and Lymphoma Society as I have for my past 3 marathons with the additional goal of raising money for Team IBD Kids. I will be joining my lifelong friend, Debbie Shapiro in this fundraising effort. To support Team IBD Kids please donate now.
What is IBD?
Crohn’s Disease and Ulcerative Colitis, known as IBD, are the most common chronic and serious gastrointestinal disorders affecting children. Both Crohn’s and Colitis tend to strike during childhood at an average age of 12 years old. The cause of these conditions is still unknown. UC can be cured by surgery to remove the entire large intestine. CD can not be cured by surgery. Both are treated with a variety of medications and other therapies.
Imagine what it is like to be a kid with IBD:
• Eating becomes a struggle and not a source of enjoyment like it is for everyone else
• You are not like all the other healthy kids who eat anything they want, you are different
• Frequent trips to doctors and hospitalizations
• Needles and IVs become commonplace in your life
• During the hospital stays you are surrounded by sadness and other seriously ill children
• Having a lowered immunity you are prone to catch other illnesses more easily than other children
• You often become labeled as “the sick kid”
• It is not uncommon for normal growth and the ability to mature to be stunted because of your illness, the results of which many children carry into their adult life
• Missing a lot of school causing added stress and pressure to try to catch up
• Needing special permission from the school to use the lavatory when needed because of the frequency
• Swallowing dozens of pills trying to hopefully find a combination that works
• Receiving intravenous medications that are administered in the hospital
• Living with the threat of major surgery
• Living with the permanent scar, both physically and mentally, after surgery
Having a child with IBD is a life changing experience, bringing a great deal of anxiety and stress to the families who have been touched by this. Please help support families who are suffering the way our family did. Please make a generous donation to Team IBD Kids. Donate now.
To Donate by check: Check payable to: Team IBD Kids (Downloadable pdf form)
Team IBD Kids — THE MISSION
The mission of the Children’s IBD Center at Mount Sinai is to provide state of the art comprehensive medical care, in a compassionate environment to children with IBD and their families. The center provides:
• On-going educational lectures and support groups
• Website
• Newsletters
• Trained parent volunteers who are available to talk to families
• Ongoing research
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Our children are all helping me fundraise in their own way. Our oldest, Melissa, is an aspiring singer and songwriter who will be offering her new CD online with proceeds being donated to Team in Training. You can hear her tunes by visiting www.myspace.com/melissasperber.
Our son David is so supportive that he has decided to help me with my fundraising for this event as part of his community service requirement for his upcoming Bar Mitzvah. The Rock-n-Roll Marathon is an especially fitting event since David is an awesome guitar player and a huge fan of classic rock.
Jillian, our youngest child, created a fundraising poster and walked the parking lot with me at Giant's Stadium to collect donations from the awesome football fans who were there tailgating before the Giants-Patriots game. The response was generous and overwhelming!
My husband Jeff supports me in everything I do. To keep pace, Jeff now runs anywhere from 2-6 miles a day on the treadmill. He has lost almost 40 pounds and has improved his own health exponentially!
We are fundraising as a family team. I am blessed to have the support
of my amazing husband and 3 children. For this next event we are Team
Sperber for Team in Training!
There are many ways to help us with our fundraising goal. For more
information please visit www.runningonlove.org.
Every five minutes, someone new is diagnosed with blood cancer. Every 10 minutes, someone dies. Leukemia causes more deaths than any other cancer among children and young adults under the age of 20. All of us on Team In Training are raising funds to help stop leukemia, lymphoma, Hodgkin lymphoma and myeloma from taking more lives. I'm completing this event in honor of all individuals who are battling blood cancers. These people are the real heroes on our team, and we need your support to cross the ultimate finish line - a cure!
I hope you'll visit my web site often. Be sure to check back frequently to see my progress. Thanks for your support!











We went into NY the day before to stay overnight, celebrate Debbie's birthday, and be there in the starter's corral in Central Park at 6:15am sharp. The morning of the race I was pretty nervous about not having run more than 9 miles since April and having taken so much time off from my training. There was a 3 hour time limit for the runners. My goal was simple this time: Finish in under 3 hours without getting injured and before the meat wagon picks me up!
I had the Sperber cheering section on hand in Central Park all decked out in Running on Love T-shirts. Central Park in my humble opinion was one gigantic hill. I couldn't wait to get out of there! As I headed out of the park towards Times Square we had the NYPD Blue on their bull horns yelling at us in thick NY accents: "Hey you runners, its 8:30am and you're running down Times Square! It don't get better than that!" I couldn't agree more.


The race ended in Battery Park. My chip time was 7 minutes better than it was in the Brooklyn Half Marathon in April. I guess you could say this is now my PR or Personal Record. I believe running is a great sport because your only true competition is yourself. Oh what a beautiful feeling...to finish a 1/2 marathon (13.1 miles) and celebrate with the people that you love! Just amazing!
"When you get home tonight or if you are home when you are reading this . . . give your kids and the rest of your family a big hug and be thankful for their good health."
This is a somber reminder, particularly when news like this hits home, that for all the progress in the treatment of blood-related cancers, there is still much work to be done. You may not be aware, but Leukemia is the #1 disease killer of children under the age of fifteen.
Please help in any way that you can to support and donate to the Leukemia and Lymphoma Society by returning to www.runningonlove.org Perhaps someday we can prevent other families from suffering this unthinkable grief.
Thank you for your support!
All my best,
Lori
In Loving Memory and Honor of Sue and Marty Sperber

I am now training to run in the Marine Corps Marathon on October 28th in Washington DC as a proud member of The Leukemia & Lymphoma Society’s Team in Training. I will be doing this event in loving memory and honor of Sue and Marty Sperber, my dear in-laws who have now both passed on. It is with great honor, love and joy that I dedicate myself to complete this fundraising effort as a tribute to two of the kindest and most loving people I have ever known.
They Were the Definition of Love
In my life, I have been extremely blessed. One of the sweetest blessings I have enjoyed is receiving unconditional love from the two most wonderful people, Martin and Sue Sperber. These two loving and devoted parents and grandparents, showered us all with love and affection whenever they could. They never missed an opportunity to send us cards on every occasion, to be there in our time of need, or to rejoice in our happiness. They embraced me immediately and always treated me like their daughter. There was always a card for me on Mother’s Day, Valentine’s Day, Birthdays, and Anniversaries and they always read “Dear Daughter”, never "Daughter-in-law". They gave their love and devotion fully and unconditionally, without any expectation of receiving or needing anything in return, not even a thank you. Our needs and happiness were always paramount and placed ahead of their own. I will always cherish their beautiful memory and will be forever grateful for having had them in my life.
As I passed the 20 mile mark during my NJ Marathon run, it was incredibly tough to keep going. I found that it was difficult to even drink water let alone take in nutrition that I needed for fuel. What kept me going when I was running on empty? In a word, Love. When I am running the Marine Corps Marathon my inspiration will be my love for Mama Sue and Papa Marty. I have no doubt that my love and admiration for them will carry me all the way to the finish line .
Cancer, regardless of what type it may be, does not discriminate on who it shall strike next. All of us have been touched by this in our lives and can relate to the pain it causes families all over the world. Let's work together to do what we can to help those in their time of need. All of us on Team in Training are raising funds to help stop leukemia, lymphoma, Hodgkin lymphoma and myeloma from taking more lives. Please make a donation to support my participation in Team in Training and help advance the Society's mission.
I hope you'll visit my web site often. Be sure to check back frequently to see my progress.
Thanks for your support!